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User profile: Patrick Jones – Living with Traumatic Brain Injury with help from Evernote

Tips and Stories | By Megan Soto
 
Name: Patrick Jones
Location: Colorado, USA
Website: Brain Injury Chaplain
Uses: Evernote for Mac and Evernote for iPhone


We hear many interesting and unique stories from our users who tell us how Evernote helps them remember everything, but we never realized how important that could be until we got a note from Deacon Patrick Jones who uses Evernote to, literally, remember everything.

Deacon Patrick Jones of the Catholic Diocese of Colorado Springs has sustained eight concussions since age 12 and as a result suffers from Traumatic Brain Injury (TBI), which causes severe short-term memory loss. In recent years, Traumatic Brain Injury has received some attention because it is among the most prevalent injuries sustained by veterans returning from Iraq and Afghanistan.

How Patrick Jones uses Evernote

In his day-to-day life, Patrick uses Evernote to help him piece together the basic memory flows we take for granted.

In a Psychology Today story published last year, Patrick tells of the process he went through to remember his connection to the article’s author who was calling to interview him:

“First, I got your email and had no idea who you were or why [we] were talking. The history in the email didn’t help much. So I searched “Gary Marcus” in my Mac’s Spotlight, which turned up an Evernote [note] on who you are and why we’re interacting, who put us in touch with each other, a log of our interactions, etc.”

The smallest memory connection becomes an active mapping exercise, helping Patrick to refresh his thought process in order to make daily decisions and engage with people in his life. This process includes taking notes, clipping articles, saving emails and images all into Evernote. When recalling the details of everyday situations, Patrick searches his Evernote account for keywords, tags, and text in images to solidify the memory. The resulting collection of notes help him trace and pull together the pieces of whatever task or connection he might be recalling.

“While I am able to handle various concepts, details disappear in a matter of days. Evernote is where I keep the details I need to reference later, linked to the concepts they belong to so they’re easy to find whenever and wherever I need.”

Aside from Evernote, Patrick also uses Curio on the Mac (an Evernote integration partner) and an iPhone which allows him to create diagrams of interconnected thoughts, replicating the way the mind normally wanders from thought to thought.

Patrick’s story is truly an inspiration. With the help of Evernote and other tools and skills, Patrick leads a rich life with his wife of 19 years and three children in Colorado where he is an author and carries out his ministry at Our Lady of the Woods parish in Teller County. You can learn more about his story on his site, which raises awareness about TBI. Also, take a look at his iPhone donation project that provides iPhones to individuals with severe memory loss.

Patrick’s latest project

With help from a community of volunteers, Deacon Patrick’s latest project, Mind Your Head Co-op, is launching in the coming months to provide support for other TBI-afflicted individuals. ‘Mind Your Head Co-op’ is a continuation of Deacon Patrick’s current TBI awareness campaign, Shoot The Moon For Brain Injury, which documents a collective effort to run 1.4 million miles with the goal to raise $100 Million for brain injury research and additionally fund Mind Your head.

“Every brain injury is different and what worked for me might not work for others,” Patrick says. “Medical science is somewhat baffled in terms of treating TBI. ‘Mind Your Head’ will be a resource for people to share their guinea-pig treatments and coping mechanisms with the greater TBI community.”

Through this forum, members can contribute their memory-retrieving techniques and methods, rate and comment on each others’ treatments and ultimately find an approach that works for them – like Evernote did for Deacon Patrick – so that they can, as he puts it, “Enter life as fully as possible.”

Donating Evernote Premium accounts

We’d like to do our small part to help Patrick in his efforts and will be donating 50 Evernote Premium accounts to the Mind Your Head Co-op.

To find out more, please visit: mindyourheadcoop.org

  • Carsten Dreesbach

    That is very cool! This is a real use for software, something that actually helps people in their day-to-day lives. Wish I could say that about something I write sometime – congrats!

  • http://www.proteadigital.com Steven

    Great work guys! Been an enthusiastic Evernoter for a while, and glad to hear your are supporting people doing good things. Well done.

  • http://blog.grovehillsoftware.com/ Matt Passell

    I hope this doesn’t sound too tacky, but when I read the title of this post, I immediately thought of the movie Memento ( http://www.imdb.com/title/tt0209144/ ). Guy Pearce’s character “Leonard” would certainly have found Evernote useful.

    I definitely find it very useful. :)

    Thanks!

    • Fabricio Zuccherato

      @Matt Passell, I thought exactly the same thing!!! Evernote is the modern world’s memento :)

  • Kyra

    My daughter (12) has similiar problems from a TBI at age 2. She struggles everyday. We’ve tried dayplanners, but she loses them. Thank you for sharing this story. I am putting Evernote on her Ipod touch 1st thing tomorrow. I have been using Evernote for a few months now for writing and photography projects. I never thought to use it for my daughter!

  • http://www.brainline.org Brian King

    What a great product and glad to hear that it’s beneficial to people who have sustained a traumatic brain injury! It got me thinking about how technology and can help this community.

    Check out http://www.brainline.org, it’s a great resource for pulling together all the disparate resources on TBI that are out there. We’re also on Facebook and Twitter from there.

    Would love to hear more about other people who use your technology to cope with their injuries! The curio integration is a perfect match for this community as well.

  • Ceal

    Interested to know more about how it integrates with ‘Personal Brain’ and BusyCal. Also, any more inspirational tales out there in relation to Adult ADD?? Thanks.

  • http://jacobian.biz jacobian

    well this is just so heart-breaking.but now we know that evernote is quite useful.

  • Gino

    As a software engineer for over 30 years, my job has become more and more complicated. To add to the complexity, I have Bipolar Disorder, which causes shifts in mood and thinking. Furthermore, the medication I take acts like a “memory reset” roughly every 4 doses – that’s half a day.

    I have used PDA’s for years to help remember things, and depend on their alarms to get me to meetings, etc. When got my iPod Touch, I needed a better way to get things in and out of it. Evernote was the answer. I have a lot of complicated data stored in there with photos, etc. I love that I could put spreadsheets in there too. Because of the “cloud” synching, I can get my stuff into my PC too.

    The name of the game is to use whatever tools you can to organize your life, and don’t give up!
    Gino

  • steven obrien

    I understand everything he’s going through after having returned from Iraq with a TBI as well and I also use evernote for day to day memory tasks as well as for my medication reminders.

  • http://brainsciencepodcast.com Ginger Campbell, MD

    I recently interviewed Dr. Whitehouse about Alzheimer’s on my Brain Science Podcast. We reflected on the need for tools to help dementia patients use technology.

    When I was editing the interview I couldn’t help thinking that Evernote would be the perfect tool if we could figure out a way to get to patients and their families.

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